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Where can I find additional resources on palliative care and human rights?
Resources
To further your understanding on the topic of palliative care and human rights, a list of commonly used resources has been compiled and organized into the following categories:
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Declarations and resolutions: UN
- Resolution adopted by the UN General Assembly, 26th special session, Agenda item 8, S-26-2. Declaration of Commitment on HIV/AIDS. 2001.
- World Health Assembly Resolution 58.22 Cancer prevention and control, May 2005.
Source: www.who.int/gb/ebwha/pdf files/WHA58/WHA58 22-en.pdf
- Pursuant to World Health Assembly Resolution 58.22 and the Economic and Social Council (ECOSOC) Resolution 2005/25: Joint Report of the Director-General of the World Health Organization and the President of the International Narcotics Control Board, Assistance Mechanism to Facilitate Adequate Treatment of Pain Using Opioid Analgesics, March 2007.
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Declarations and Resolutions: non-UN
- Allende S, Carvell HC. Mexico. Status of Cancer Pain and Palliative Care. J Pain & Symptom Manage, Declaration of Guadalajara, 12(2)121: 123, 1996.
- Alma Ata Declaration on Health for All, 1978.
Source: www.euro.who.int/AboutWHO/Policy/20010827_1
- American Medical Association House of Delegates, Resolution Advances Palliative Medicine as Subspecialty, 2006.
Source: www.supportivecarecoalition.org/CoalitionEnews/E-News+July+2006.htm
- European Federation of Older Persons (EURAG) Recommendation: Making Palliative Care a Priority on the European Health Agenda and Recommendations on Developing Palliative Care in Europe. 2004.
Source: www.eurag-europe.org
- Luczak J. The Poznan Declaration. (1998)
Source: www.oncology.am.poznan.pl/ecept/declaration.php
- Montejo Rosas G. Mexican Declaration of Cancer Pain Relief, (1992) El enfermo con cáncer incurable y la medicina paliativa en México. Salud Publica de México 34(5):569-574
- Sebuyira LM, Mwangi-Powell F, Perira J and Spence C. The Cape Town Palliative Care Declaration: Home-Grown Solutions for Sub-Saharan Africa. J PLL Mws (2003) 6; 3: 341-343.
- Sen A. Elements of a theory of human rights. Philosophy of Public Affairs, 2004; 32:315-56.
- The Korean Declaration. Report of the Second Global Summit of National Hospice and Palliative Care Associations, Seoul, March 2005.
Source: www.hpc-assocations.net .
- World Health Assembly Resolution 58.22 Cancer prevention and control, May 2005.
Source: www.who.int/gb/ebwha/pdf_files/WHA58/WHA58_22-en.pdf
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Position Statements
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Books
- Berzoff J, Silverman R. (eds). Living with Dying: A Comprehensive Resource for End-of-Life Care. Columbia University Press, NY, 2004.
- Ferrell B, Coyle N (eds) Oxford Textbook of Palliative Nursing, 3rd edition, 2006.
- Goldman A, Hain R, Liben R (eds) Oxford Textbook of Palliative Care for Children, 2006.
- Gwyther L, Merriman A, Mpanga Sebuyira L, Shietinger H: A Clinical Guide to Supportive and Palliative Care for HIV/AIDS in Sub-Saharan Africa, 2006.
Source: www.apca.co.ug/publications/ClinicalGuide/index.htm
- Hanks G, Cherny N and Calman K (eds) Oxford Textbook of Palliative Medicine, 6th edition, 2006.
- O’Neill JF, Selwyn PA, Schietinger H. A Clinical Guide to Supportive & Palliative Care for HIV/AIDS, Washington, D.C.: Health Resources and Services Administration, 2003.
- Wright M, Clark D (eds). Hospice and Palliative Care in Africa: A Review of Development and Challenges. Oxford University Press, United Kingdom, 2006.
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Reports, key articles, and other documents
Palliative care as a human right
- Brennan F. Palliative Care as a Human Right. Journal of Pain and Symptom Management. In Press, May 2007.
Source:
www.soros.org/initiatives/health/focus/law/articles_publications/publications/pchumanright_20080101
- California Bus. And Prof. Code, s. 2190.5, and 2313 (West 2004); Medical Treatment Act (1994) Australian Capital Territory, s 23 (1); Consent to Medical Treatment and Palliative Care Act 1995 (South Australia), s. 17 (1).
- Estate of Henry James v Hillhaven Corporation. No. 89 CVS 64 (North Carolina Superior Court Division) 1991.
Source: www.painandthelaw.org/malpractice/undermedicating_cases.php
- Harding R. Palliative Care. A basic human right.
Source: www.id21.org/insights/insights-h08/art00.html
- In the High Court of Delhi at New Delhi Extraordinary Civil Writ Jurisdiction Civil Writ Petition. No. 942 of 1998-Orders.
- Montreal Statement on the Human Rights to Essential Medicines (2005).
Source: www.economyandsociety.org/events/Pogge_background_paper2.pdf.
- Pope Benedict XVI. Message of His Holiness Benedict XVI for the Fifteenth World Day of the Sick. December 8, 2006.
Source: www.vatican.va/holy_father/benedict_xvi/messages/sick/documents/hf_ben-xvi_mes_20061208_world-day-of-the-sick-2007_en.html
- Recommendation Rec (2003)24 of the Committee of Ministers to member states on the organization of palliative care. Adopted by the European Committee of Ministers on November 12, 2003.
Source: www.coe.int/T/E/Social_Cohesion/Health/Recommendations/Rec(2003)24.asp
- Somerville M. Human Rights and Medicine. The Relief of Suffering. In: Cotler I and Eliadis FD, ed. International Human Rights Law: Theory and Practice. Pg. 505-522. Montreal: Canadian Human Rights Foundation, 1992.
- Standing Committee on Social Affairs, Science and Technology. Quality end-of-life care: the right of every Canadian; final report of the Subcommittee to update of Life and Death. Senate of Canada. June, 2000.
Source: www.parl.gc.ca/36/2/parlbus/commbus/senate/Com-e/upda-e/rep-e/repfinjun00-e.htm
- Treatment Action Campaign v Minister of Health (Kwa-Zulu-Natal). Constitutional Court of South Africa. (2002)
Source: www.tac.org.za/Documents/MTCTCourtCase/ConCourtJudgmentOrderingMTCTP-5July2002.pdf
Pain Management as a Human Right
- Brennan F. Cousins MJ. Pain Relief as a Human Right. Pain – Clinical Updates. Volume XII, No. 5, September 2004.
- Foley KM, Wagner JL, Joranson DE, Gelband H. Pain Control for People with Cancer and AIDS. Disease Control Priorities in Developing Countries. 2nd Edition. Oxford University Press, 2006; 981-994.
- Scholten W, Nygren-Krug H, Zucker HA. WHO paves the way for action to free people from the shackles of pain. Editorial. Anesthesia & Analgesia, special issue on pain management as a human right. Anes.Analg.2007Jul;105(1):1-4.
Source: www.anesthesia-analgesia.org/cgi/content/full/105/1/1?maxtoshow=&HITS=10&hits=10&RESULTFORMAT=&author1=
Scholten&andorexactfulltext=and&searchid=1&FIRSTINDEX=0&sortspec=relevance&resourcetype=HWCIT
- World Hospice and Palliative care Day 2007, Access to Pain Relief- An Essential Human Right: The State of the World (Published by the Help the Hospices for the Worldwide Palliative Care Alliance), September 2007. Source: www.worldday.org/documents/access_to_pain_relief.pdf
Essential Medicines and Human Rights
- Foley KM, Wagner JL, Joranson DE, Gelband H. Pain Control for People with Cancer and AIDS. Disease Control Priorities in Developing Countries. 2nd Edition. Oxford University Press, 2006; 981-994.
- Ghooi RB, Ghooi SR. A Mother in Pain. The Lancet, 1998;352 (9138):1622.
- Ghooi RB, Ghooi SR, Chaturvedi HK. Pain Relief in India. The Lancet 1999; 353 (9):677.
- Hogerzeil HV. Essential Medicines and Human Rights: What Can They Learn from Each Other? Bulletin of the World Health Organization, May 2006; 84.
- Hogerzeil HV, Samson M, Casanovas JV, Rahmani L. Access to Essential Medicines As Part of the Fulfillment of the Right to Health: Is It Enforceable through the Courts? Department of Medicines Policy and Standards, World Health Organization, Geneva, 2006.
- WHO (World Health Organization) Assuring the Availability of Opioid Analgesics for Palliative Care, Report on WHO Workshop. Budapest, Hungary, 2002.
Source: www.euro.who.int/document/e76503.pdf
Other
- African Palliative Care Association. 2006. Advocacy Workshop for Palliative Care in Africa: A Focus on Essential Pain Medication Accessibility. Uganda: APCA.
Source: www.apca.co.ug/advocacy/workshop/index.htm
- African Palliative Care Association. 2006. The Report on Pain Relieving Drugs in 12 African PEPFAR Countries. Uganda: APCA
Source: www.apca.co.ug/publications/painrelief.htm
- African Palliative Care Association. 2006. Mentoring for Success: A Manual for Palliative Care Professionals, Organizations and Associations. Uganda: APCA.
Source : www.apca.co.ug/publications/mentorship.htm
- A Journal of Pain and Symptom Management special issue on “The Current Status of Palliative Care”, May 2007.
- American Declaration of Rights and Duties of Man, O.A.S. Res. XXX, adopted by the Ninth International Conference of American States (1948).
- Guellec D. Delhi High Court’s Surprise Decision, 1998.
Source: www.Sulekha.com
- Rajagopal MR, Joranson DE, Gilson AM. Medical Use, Misuse, and Diversion of Opioids in India. The Lancet 2001. July 14; 358(9276):139-43.
- Singh K. In “Terminal Illness and Pain” Hindustan Times, June 27, 1998.
- Singer EJ, Zorilla C, Fahy-Chandon B, Chi S, Syndulko K, Tourtellotte WW. 1993. Painful Symptoms Reported by Ambulatory HIV-Infected Men in a Longitudinal Study. Pain 54(1):15-19.
- Stjernsward J, Clark D. 2003. Palliative Medicine: A Global Perspective. In Oxford Textbook of Palliative Medicine, 3rd ed., ed. D. Doyle, G.W. C. Hanks, N. Cherny, and K. Calman, 1199-222. New York: Oxford University Press.
- The International Observatory on End of Life Care to map the development of hospice and palliative care globally.
Source: www.eolc-observatory.net
- UNAIDS (2000) AIDS Palliative Care, UNAIDS Technical Update.
Source: data.unaids.org/Publications/IRC-pub05/JC453-PalliCare-TU_en.pdf
- UNICEF (2004) The Framework for the protection, care and support of orphans and vulnerable children living in a world with HIV and AIDS.
Source: www.unicef.org/publications/files/Enhanced_Protection_for_Children_Affected_by_AIDS.pdf .
- UNODC/WHO/UNAIDS (2006) HIV Prevention, Care, Treatment and Support in Prison Settings. A Framework for an Effective National Response.
- United Nations. 1961. Single Convention on Narcotic Drugs.
Source: www.incb.org/pdf/e/conv/convention_1961_en.pdf .
- Webster R, Lacey J, Quine. Palliative Care: A Public Health Prioirty in Developing Countries. Journal of Public Health Policy 2007; 28:28-39.
- WHO (World Health Organization). 2007. Cancer Control: Knowledge into Action. A Guide to Effective Programmes. Palliative Care. Geneva: WHO. In Press.
Source: www.who.int/cancer/modules/Order%20form.pdf
- WHO (World Health Organization). 2006. 34th Report of the WHO Expert Committee on Drug Dependence. Technical Report 942. Geneva: WHO.
Source: whqlibdoc.who.int/trs/WHO_TRS_942_eng.pdf
- WHO (World Health Organization). 2006. Palliative Care is An Essential Part of Cancer Control and Can Be Provided Relatively Simply and Inexpensively. Geneva: WHO.
Source: www.who.int/cancer/palliative/en/
- WHO (World Health Organization). 2004. Davies E, Higginson IJ, eds. The Solid Facts: Palliative Care. Geneva: WHO.
Source: www.euro.who.int/document/E82931.
- WHO (World Health Organization). 2004. Davies E, Higginson IJ, eds. Better Palliative Care of Older People. Geneva: WHO.
Source: www.euro.who.int/document/E82933.pdf
- WHO (World Health Organization). 2004. Palliative Care: Symptom Management and End of Life Care. Integrated Management of Adolescent and Adult Illness. Geneva: WHO.
Source: www.who.int/3by5/publications/documents/en/genericpalliativecare082004.pdf
- WHO (World Health Organization). 2000. Achieving Balance in National Opioids Control Policy: Guidelines for Assessment. Geneva: WHO.
Source: www.painpolicy.wisc.edu/publicat/00whoabi/00whoabi.htm
- WHO (World Health Organization). 2002. A Community Health Approach to Palliative Care for HIV/AIDS and Cancer Patients in Sub-Saharan Africa. Geneva: WHO.
Source: www.who.int/cancer/publications/en/
- WHO (World Health Organization). 1996. Cancer Pain Relief: with a Guide to Opioid Availability, 2nd Edition. Technical Report. Geneva: WHO.
Source: www.painpolicy.wisc.edu/publicat/cprguid.htm
- WHO (World Health Organization). 1990. Cancer Pain Relief and Palliative Care in Children. Geneva: WHO.
Source: www.who.int/bookorders/francais/detart2.jsp?sesslan=2&codlan=1&codcol=15&codcch=459
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Websites
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Training opportunities and key conferences
- African Palliative Care Association, Advocacy Workshop, Accra, Ghana: May 8-10, 2007.
Source: www.apca.co.ug/index.htm
- 2nd African Palliative Care Association Conference—Nairobi, Kenya: September 19-21, 2007.
Source: www.apca2007nairobi.com/index.htm
- Asia Pacific Hospice Conference—Manila, Philippines: September 27-29, 2007.
Source: www.aphc2007.com
- Cardiff University, Diploma in Palliative Medicine
Source: www.pallium.cardiff.ac.uk
- Certificate in Palliative Care, University of Wales, College of Medicine Palliative Care Education Unit
Email: Dippallmed@velindre-tr.wales.nhs.uka
- Clinical Palliative Care--Short Course, Long Course, Hospice Africa Uganda
Source: www.hospiceafrica.or.ug
- Diploma in Palliative Care, Coventry University, UK
Email: hssgen@coventry.ac.uk
- Diploma in Palliative Care Course, University of Gloucestershire, School of Health & Social Sciences, Francis Close Hall, Swindon Road, Cheltenham, UK
Email: shss@glos.ac.uk
- Diploma in Supportive and Palliative Care,
Sheffield Hallam University, Sheffield, UK
Email: admissions@shu.ac.uk
Source: www2.shu.ac.uk/prospectus/op_pglookup1.cfm?id_num=HSC011
- Distance Learning Diploma Course, Makerere University and Hospice Africa Uganda
Source: www.hospiceafrica.or.ug
- Distance Learning Course in Palliative Medicine, University of Dundee
Source: www.dundee.ac.uk/prospectus/distlearning/deptprofiles/palliative.htm
- Distance Learning Course in Symptom Control, Beth Israel Medical Center, Department of Pain Medicine and Palliative Care
Source: www.stoppain.org/for_professionals/content/education/elearning.asp
- End of Life Palliative Care Education Resource Center (EPERC)
Source: www.eperc.mcw.edu
- End of Life Nursing Education Consortium (ELNEC) Core Syllabus
Source: www.aacn.nche.edu/elnec/index.htm
- Fellowship in Palliative Medicine
Contact Prof. Reena George (palcare@cmcvellore.ac.in)
- Finding our Way: Living with dying in America
Source: itrs.scu.edu/fow/pages/FOWCOURSEINDEX.html
- Free online course for nurses and carers
Source: www.cancernursing.org
- Guide I: Become and Effective Online Educator in Palliative Care
University of Calgary in partnership with IAHPC
Email: palacios@ucalgary.ca
- International Observatory on End of Life Care Summer School Social Research Methods, Bowland Tower East, Lancaster University, RU
Email: hargreaves@lancaster.ac.uk
Source: www.eolc-observatory.net
- Introduction to Palliative Care Nursing Course
Source: www.CancerNursing.org
- Master of Science in Palliative Care
Graduate Certificate in Health (Palliative Care)
Graduate Certificate in Pediatric Palliative Care
Graduate Diploma in Palliative Care
Master of Palliative Care
Graduate Certificate in Palliative Care in Aged Care
Graduate Diploma in Palliative Care in Aged Care and
Master of Palliative Care in Aged Care
Flinders University, Adelaide, Australia
Source: www.flinders.edu.au
- Master of Science in Palliative Care
King's College London
Department of Palliative Care and Policy
Email: jonathan.s.koffman@kcl.ac.uk
Source: www.kcl.ac.uk/palliative
- MPhil in Palliative Medicine, University of Cape Town
Source: www.uct.ac.za/students/degrees/health/postgraduate/
- MSc Diploma and Certificate in Palliative Medicine, Kings College London
Source: www.kcl.ac.uk/schools/medicine/depts/palliative/spc/
- Palliative Care Resource Training Center: Hungarian Hospice Foundation
Source: www.hospicehaz.hu/eng/
- Palliative Care Education Resource Team for Nursing Homes Curriculum
Source: www.swedishmedical.org/PERT/curriculum.htm
- Palliative Care Resource Training Center: Hospice Casa Sperantei
Source: hospice.ong.ro/e_index.htm
- Palliative Care in HIV Management
Global AIDS Learning & Evaluation Network (GALEN)
International Association of Physicians in AIDS Care (IAPAC)
Source: www.hospicecare.com/resources/pdf-docs/galen-pallcare-eng.pdf
- Palliative Care Research: Strategic Training Program
Universite Laval, McGill University, University of Ottawa, Canadian Institutes of Health Research, National Cancer
Institute of Canada
Email: saode.savary@mcgill.ca
Source: www.mcgill.ca/cihr-pcresearch
- Palliative Care Resource Training Center: Hospice Palium
Source: hospice.ong.ro/e_index.htm
- Postgraduate Diploma in Palliative Medicine, University of Cape Town
Source: www.uct.ac.za/downloads/uct.ac.za/apply/handbooks/fac_health.pdf
- Postgraduate Diploma in Palliative Care, Newcastle University
Source: www.ncl.ac.uk/postgraduate/taught/course/23
- The Initiative for Pediatric Palliative Care: IPPC Curriculum and Video Series
Source: www.ippcweb.org
- Third Worldwide Summit for National Associations of Hospice and Palliative Care. Nairobi, Kenya: September 17-18, 2007
Source: www.fedcp.org/pdf_congressi/Kenya.pdf
- University of Washington, Seattle, Center for Palliative Care Education
Source: depts.washington.edu/pallcare/training/index.shtml
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