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Where can I find additional resources on palliative care and human rights?

Resources

To further your understanding on the topic of palliative care and human rights, a list of commonly used resources has been compiled and organized into the following categories:

Declarations and resolutions: UN

  • Resolution adopted by the UN General Assembly, 26th special session, Agenda item 8, S-26-2. Declaration of Commitment on HIV/AIDS. 2001.
  • World Health Assembly Resolution 58.22 Cancer prevention and control, May 2005. 
    Source: www.who.int/gb/ebwha/pdf files/WHA58/WHA58 22-en.pdf
  • Pursuant to World Health Assembly Resolution 58.22 and the Economic and Social Council (ECOSOC) Resolution 2005/25:  Joint Report of the Director-General of the World Health Organization and the President of the International Narcotics Control Board, Assistance Mechanism to Facilitate Adequate Treatment of Pain Using Opioid Analgesics, March 2007.

Declarations and Resolutions: non-UN

  • Allende S, Carvell HC. Mexico. Status of Cancer Pain and Palliative Care. J Pain & Symptom Manage, Declaration of Guadalajara, 12(2)121: 123, 1996.
  • Alma Ata Declaration on Health for All, 1978.
    Source: www.euro.who.int/AboutWHO/Policy/20010827_1
  • American Medical Association House of Delegates, Resolution Advances Palliative Medicine as Subspecialty, 2006.
    Source: www.supportivecarecoalition.org/CoalitionEnews/E-News+July+2006.htm
  • European Federation of Older Persons (EURAG) Recommendation: Making Palliative Care a Priority on the European Health Agenda and Recommendations on Developing Palliative Care in Europe. 2004.
    Source: www.eurag-europe.org
  • Luczak J. The Poznan Declaration. (1998)
    Source: www.oncology.am.poznan.pl/ecept/declaration.php
  • Montejo Rosas G. Mexican Declaration of Cancer Pain Relief,  (1992) El enfermo con cáncer incurable y la medicina paliativa en México. Salud Publica de México 34(5):569-574
  • Sebuyira LM, Mwangi-Powell F, Perira J and Spence C. The Cape Town Palliative Care Declaration: Home-Grown Solutions for Sub-Saharan Africa. J PLL Mws (2003) 6; 3: 341-343.
  • Sen A. Elements of a theory of human rights. Philosophy of Public Affairs, 2004; 32:315-56.
  • The Korean Declaration. Report of the Second Global Summit of National Hospice and Palliative Care Associations, Seoul, March 2005.
    Source: www.hpc-assocations.net .
  • World Health Assembly Resolution 58.22 Cancer prevention and control, May 2005.
    Source: www.who.int/gb/ebwha/pdf_files/WHA58/WHA58_22-en.pdf

Position Statements

Books

  • Berzoff J, Silverman R. (eds).  Living with Dying: A Comprehensive Resource for End-of-Life Care.  Columbia University Press, NY, 2004.
  • Ferrell B, Coyle N (eds) Oxford Textbook of Palliative Nursing, 3rd edition, 2006.
  • Goldman A, Hain R, Liben R (eds) Oxford Textbook of Palliative Care for Children, 2006.
  • Gwyther L, Merriman A, Mpanga Sebuyira L, Shietinger H:  A Clinical Guide to Supportive and Palliative Care for HIV/AIDS in Sub-Saharan Africa, 2006.
    Source: www.apca.co.ug/publications/ClinicalGuide/index.htm
  • Hanks G, Cherny N and Calman K (eds) Oxford Textbook of Palliative Medicine, 6th edition, 2006.
  • O’Neill JF, Selwyn PA, Schietinger H. A Clinical Guide to Supportive & Palliative Care for HIV/AIDS, Washington, D.C.: Health Resources and Services Administration, 2003.
  • Wright M, Clark D (eds).  Hospice and Palliative Care in Africa: A Review of Development and Challenges.  Oxford University Press, United Kingdom, 2006.

Reports, key articles, and other documents

Palliative care as a human right
Pain Management as a Human Right
Essential Medicines and Human Rights
  • Foley KM, Wagner JL, Joranson DE, Gelband H.  Pain Control for People with Cancer and AIDS.  Disease Control Priorities in Developing Countries.  2nd Edition.  Oxford University Press, 2006; 981-994.
  • Ghooi RB, Ghooi SR.  A Mother in Pain.  The Lancet, 1998;352 (9138):1622.
  • Ghooi RB, Ghooi SR, Chaturvedi HK.  Pain Relief in India.  The Lancet 1999; 353 (9):677.
  • Hogerzeil HV. Essential Medicines and Human Rights: What Can They Learn from Each Other?  Bulletin of the World Health Organization, May 2006; 84.
  • Hogerzeil HV, Samson M, Casanovas JV, Rahmani L. Access to Essential Medicines As Part of the Fulfillment of the Right to Health: Is It Enforceable through the Courts?  Department of Medicines Policy and Standards, World Health Organization, Geneva, 2006.
  • WHO (World Health Organization) Assuring the Availability of Opioid Analgesics for Palliative Care, Report on WHO Workshop. Budapest, Hungary, 2002.
    Source:  www.euro.who.int/document/e76503.pdf
Other
  • African Palliative Care Association.  2006.  Advocacy Workshop for Palliative Care in Africa: A Focus on Essential Pain Medication Accessibility.  Uganda: APCA. 
    Source: www.apca.co.ug/advocacy/workshop/index.htm
  • African Palliative Care Association. 2006.  The Report on Pain Relieving Drugs in 12 African PEPFAR Countries. Uganda: APCA
    Source: www.apca.co.ug/publications/painrelief.htm
  • African Palliative Care Association.  2006.  Mentoring for Success:  A Manual for Palliative Care Professionals, Organizations and Associations. Uganda: APCA. 
    Source : www.apca.co.ug/publications/mentorship.htm
  • A Journal of Pain and Symptom Management special issue on “The Current Status of Palliative Care”, May 2007.
  • American Declaration of Rights and Duties of Man, O.A.S. Res. XXX, adopted by the Ninth International Conference of American States (1948).
  • Guellec D. Delhi High Court’s Surprise Decision, 1998.
    Source: www.Sulekha.com
  • Rajagopal MR,  Joranson DE, Gilson AM. Medical Use, Misuse, and Diversion of Opioids in India. The Lancet 2001. July 14; 358(9276):139-43.
  • Singh K. In “Terminal Illness and Pain” Hindustan Times, June 27, 1998.
  • Singer EJ, Zorilla C, Fahy-Chandon B, Chi S, Syndulko K, Tourtellotte WW. 1993. Painful Symptoms Reported by Ambulatory HIV-Infected Men in a Longitudinal Study. Pain 54(1):15-19.
  • Stjernsward J, Clark D. 2003. Palliative Medicine: A Global Perspective. In Oxford Textbook of Palliative Medicine, 3rd ed., ed. D. Doyle, G.W. C. Hanks, N. Cherny, and K. Calman, 1199-222. New York: Oxford University Press.
  • The International Observatory on End of Life Care to map the development of hospice and palliative care globally.
    Source: www.eolc-observatory.net
  • UNAIDS (2000) AIDS Palliative Care, UNAIDS Technical Update. 
    Source: data.unaids.org/Publications/IRC-pub05/JC453-PalliCare-TU_en.pdf
  • UNICEF (2004) The Framework for the protection, care and support of orphans and vulnerable children living in a world with HIV and AIDS.
    Source: www.unicef.org/publications/files/Enhanced_Protection_for_Children_Affected_by_AIDS.pdf .
  • UNODC/WHO/UNAIDS (2006) HIV Prevention, Care, Treatment and Support in Prison Settings.  A Framework for an Effective National Response.  
  • United Nations. 1961. Single Convention on Narcotic Drugs.
    Source: www.incb.org/pdf/e/conv/convention_1961_en.pdf .
  • Webster R, Lacey J, Quine.  Palliative Care: A Public Health Prioirty in Developing Countries.  Journal of Public Health Policy 2007; 28:28-39.
  • WHO (World Health Organization).  2007.  Cancer Control: Knowledge into Action.  A Guide to Effective Programmes.  Palliative Care.  Geneva: WHO. In Press. 
    Source:  www.who.int/cancer/modules/Order%20form.pdf
  • WHO (World Health Organization).  2006.  34th Report of the WHO Expert Committee on Drug Dependence.  Technical Report 942.  Geneva: WHO.
    Source: whqlibdoc.who.int/trs/WHO_TRS_942_eng.pdf
  • WHO (World Health Organization).  2006.  Palliative Care is An Essential Part of Cancer Control and Can Be Provided Relatively Simply and Inexpensively. Geneva:  WHO.
    Source:  www.who.int/cancer/palliative/en/
  • WHO (World Health Organization).  2004.  Davies E, Higginson IJ, eds.  The Solid Facts: Palliative Care.  Geneva: WHO. 
    Source: www.euro.who.int/document/E82931.
  • WHO (World Health Organization).  2004.  Davies E, Higginson IJ, eds.  Better Palliative Care of Older People.  Geneva:  WHO.
    Source: www.euro.who.int/document/E82933.pdf
  • WHO (World Health Organization).  2004.  Palliative Care:  Symptom Management and End of Life Care.  Integrated Management of Adolescent and Adult Illness.  Geneva: WHO. 
    Source: www.who.int/3by5/publications/documents/en/genericpalliativecare082004.pdf
  • WHO (World Health Organization).  2000.  Achieving Balance in National Opioids Control Policy: Guidelines for Assessment.  Geneva: WHO. 
    Source: www.painpolicy.wisc.edu/publicat/00whoabi/00whoabi.htm
  • WHO (World Health Organization).  2002. A Community Health Approach to Palliative  Care for HIV/AIDS and Cancer Patients in Sub-Saharan Africa. Geneva: WHO.
    Source:  www.who.int/cancer/publications/en/
  • WHO (World Health Organization).  1996.  Cancer Pain Relief: with a Guide to Opioid Availability, 2nd Edition.  Technical Report.  Geneva: WHO. 
    Source: www.painpolicy.wisc.edu/publicat/cprguid.htm
  • WHO (World Health Organization).  1990.  Cancer Pain Relief and Palliative Care in Children.  Geneva: WHO. 
    Source: www.who.int/bookorders/francais/detart2.jsp?sesslan=2&codlan=1&codcol=15&codcch=459

Websites

Training opportunities and key conferences

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